Well, yesterday he had made some great advances. I was all set to have a wonderful post about his this morning.
They were able to get him semi-awake with only minimal seizures that lasted about a few seconds each. They weaned him off the ventilator. He even hugged his mom with a little help because he was so weak. He had very little muscle control when he was awake. He did respond to simple commands though. But you could see that his eyes were not focused at all.
However, we just got a phone call from his grandma. He started with the really bad seizures again that they couldn’t control. Once again, they had to put him back on the heavy duty seizure medicine that causes him to have trouble breathing. So he is back on the ventilator.
Right now everyone is scared. All the tests are coming back negative. They sent blood to both the CDC (Center for Disease Control) and NIH (National Health Institute). They can’t find anything.
The neurologist said that it is too dangerous to just let him have those big seizures because they can cause brain damage every time he has one. So their only option is to give him some heavy seizure medicines, but it’s a little too much for his body to handle.
Please continue with the prayers. We really appreciate it. We just want him to get better and be able to go home.